Miruvor
ME/CFS Severe → substantialIll for 30 years

Pulsed high dose methylprednisolone plus inosine plus inositol = cured?

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
30 years
Published
Feb 2020

Summary

After 30 years of illness, pattismith reports that a short pulsed high-dose corticosteroid course (with valacyclovir and inosine/inositol layered in) resolved her pain quickly, restored energy, and cleared her thinking enough to socialize again - "pain was gone very quickly...brain is clear and positive." She stopped the corticosteroids on March 2, 2020 due to COVID-19 concerns before the thread's first page ends, so whether the gains persisted after stopping is not established in what she posted.

Read it in their words

forums.phoenixrising.me

What they credit

Credits Antivirals, Other prescription drugs, Corticosteroid pulses, Valtrex / valacyclovir.

Symptoms mentioned

Symptoms: Pain & fibromyalgia.

Similar stories

  • Martin's Paradoxical Temporary ME/CFS Remission Story

    Relapsed ME/CFS Very severeIll 10 yearsEffect faded healthrising.org Jul 2024

    Martin became ill after EBV reactivation, Lyme disease and food poisoning, and was bedbound for the last three of his ten years of illness with severe post-exertional malaise. Lyrica, benzodiazepines, tianeptine, quetiapine, rapamycin and methylprednisolone…

  • Michelle

    Substantial Long COVID Very severeIll 6 months longcovidcured.com Jan 2023

    Michelle saw more than ten specialists and tried extensive medical treatment: beta blockers, the migraine drug Ubrelvy, meclizine for dizziness, two rounds of prednisone, B12 shots for neuropathy, and Paxlovid taken months after her initial infection, plus…

  • From a nursing patient to a mountain climber: For four years I lay completely helpless and motionless in bed

    Full recovery ME/CFS Very severeIll 8 years recoverynorway.org · sells Dec 2020

    Jan Even Raastad credits a Lightning Process course run in his home in late 2010 by Live Landmark and a medical student, after years of prednisone, Imurel, Remicade, Nexavir, antibiotics, antivirals, antifungals, growth hormones and countless supplements had…

  • Pulsed high dose methylprednisolone + inosine + inositol = cured?

    Relapsed ME/CFS SevereEffect faded forums.phoenixrising.me Feb 2020

    Replying in the same thread, Martin reports moving from "very severe to severe" on a corticosteroid infusion but says the inflammation is "not very easy to keep in check afterwards," requiring ongoing herbal management - an explicitly partial and fading…