List of ME/CFS Recovery and Improvement Stories
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Published
- Jun 2020
Summary
jeff_w is listed reaching remission from severe ME/CFS following craniocervical instability fusion surgery, per the compiled list.
What they credit
Credits Craniocervical surgery, Surgery & structural, Craniocervical fusion / tethered cord.
Similar stories
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This surgery fuses people's skulls to their spines to treat ME-overlapping condition
Jen Brea underwent craniocervical fusion performed by Dr. Paolo Bolognese, using two 2.5-centimeter titanium bars and six screws to fuse her top two vertebrae to her skull and lift her head by 4 millimeters, followed about two weeks later by tethered cord…
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The Mechanical Basis of ME
Jeff Wood became severely bedridden with post-viral ME around 2015 and, after two years developing his "Mechanical Paradigm" theory that connective-tissue problems underlie some ME cases, reported achieving full remission. The 2022 article confirms his…
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Mallory's Dangerous Spinal Treatments Eventually Work
Mallory had ME/CFS with several comorbid conditions and was mostly bedbound for around nine years. He pursued two experimental spine treatments: GHK-Cu peptide injections to stabilise his spine, and frequency specific microcurrent for a tethered cord, which…
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ME/CFS in remission from Mold Avoidance
Despite comorbid craniocervical instability, mold avoidance "still helped" and affected symptoms like sound sensitivity and POTS, which he calls "the most impressive [treatment] I've done YET." He says he never achieved full remission from mold avoidance…