Miruvor
ME/CFS Severe → substantialIll for 15 years

Nimodipine use in M.E./CFS - a comprehensive guide (S. Parker, MBA, BSc, January 2014)

Susan Parkerforums.phoenixrising.mePublished Jan 2014

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
15 years
Published
Jan 2014

Summary

Nimodipine, titrated from 45mg up to 90mg daily taken as 30mg three times a day, took her from 20-25% of well to 80-90% of well with mental clarity nearing 90%. She had been ill since 1991 and began the drug in 2006, holding the gain for more than seven years - walking six miles a day, running, dancing and driving at home and abroad. Five separate tapering attempts each produced progressive regression once she dropped below 45mg, so the improvement depends on continued dosing rather than being a cure. No significant adverse effects were reported beyond transient symptoms during each dose escalation.

Read it in their words

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Read the original ↗ Archived copy

What they credit

Calcium channel blockers (nimodipine, amlodipine, verapamil)Nimodipine / tadalafil / vasoactive

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