Anyone else here have MCS too?
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 10 years
- Published
- Oct 2017
Summary
Manages MCS mainly through avoidance, specifics not detailed, after MCS developed about 10 years into his ME/CFS during a period of heavy exercise and became horribly bad for a couple of years, impacting just about everything. Mentions Dr. Cheney treating other patients' MCS with Neurontin but does not report trying it himself. Says he is better now but still cannot sleep indoors, so the improvement is partial rather than a resolution, and he is still seeking treatments beyond avoidance.
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